MISSION
Our mission is to eliminate Sezary Syndrome from society.
The Sezary Syndrome Society is a global nonprofit charitable organization (U.S. 501c3 pending) headquartered in Madison, Wisconsin and founded in 2025 with the aim to relentlessly advance medical research and provide compassionate support to patients, families, and caregivers of those affected by Sézary Syndrome.
Through partnerships with affinity organizations, registering new potential bone marrow stem cell donors, advocacy and investment in innovative treatments including clinical trials, data science, and education around this rare condition, we shall foster hope, drive breakthroughs, and create a community of empowerment and care.
mahanth [at] gmail [dot] com
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SEZARY SYNDROME PATIENT AND CAREGIVER RESOURCES
Navigating a ultra-rare disease can be difficult. Empower yourself with the right resources.
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Information on how you or your organization can help the Sézary Syndrome Society achieve our mission
OUR ORIGIN STORY
A personal note on the history and philosophy of the Sézary Syndrome Society by our founder Mahanth Joishy
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